Best practices of integrated end of life care in Europe 2403-OG-EN-ICFP

The aims of this course are to familiarize the concept of End-of-life care (EOL), usually refers to the last year of life, although for some people this will be longer (long term severe diseases as dementia) or significantly shorter. End of life care is not just the medical care provided to the individual who is dying, but also refers to the social support available to patients, their family carers, and to bereavement support for families.

Good practices in EOL care in Europe will include good cooperation of interdisciplinary hospice-palliative care team with families (family carers) and local communities. Particular emphasis will be on non-medical aspects of care, including interdisciplinary team performance, innovative methods of social education, volunteering, support of families and bereavement services. The social problems in patients and their families at the end of life will be assessed and explained in details, as end-of-life is not only the medical but mostly social event. The principles of the interdisciplinary team and the special role of social work in end of life care will be presented. Hospice-palliative care in social education about end of life, death and mourning, with particular attention towards voluntary service and social work in Europe will be addressed.

Students will learn about: the hospice-palliative care; emotional and social needs of patients and their families at the end of life and after the loss; the role of psychologist and social workers in EOL care; the basic concept of hospice volunteering; basic knowledge about bereavement and emotional support; public education about end of life care. This knowledge will allow to work in the interdisciplinary EOLC team, assist the family members or friends towards the end of their life, and answer personally to the fundamental human questions regarding death, and end-of-life issues.

Całkowity nakład pracy studenta

Student's own work in total: 90 hours Active participation in the classes: 30 hours. Time spent finding and researching an example of a chosen practice of integrated care at the end of life for patients or families: 30 hours Time required to read the given reading and to prepare a thesis in the form of a multimedia presentation at the end of the class: 30 hours

Efekty uczenia się - wiedza

W1: knows the terminology used in social sciences and its application in related disciplines at the basic and advanced level - K_W01. W2: has an in-depth and expanded knowledge of the sources and place of social pedagogy in the system of sciences and its subject and methodological connections with other disciplines of science - K_W02 W3: has an orderly knowledge of the social pedagogy, including terminology, theory and methodology - K_W03 W4: has an in-depth knowledge about non-medical elements of care, their specificity and processes taking place in them - K_W04 W5: has ordered knowledge about the participants of the interdisciplinary caring activities - K_W05

Efekty uczenia się - umiejętności

K_U01: can use and integrate theoretical knowledge in the field of pedagogy and related disciplines in order to analyze complex educational, upbringing, caring, cultural, aid and therapeutic problems, as well as diagnose and design practical activities. K_U02: has in-depth skills of observing, diagnosing, rationally assessing caring situations in interdisciplinary context and analyzing motives and patterns of human behavior.

Efekty uczenia się - kompetencje społeczne

K_K01: is ready to take up professional and personal challenges in care; is active, takes the trouble and is persistent in undertaking individual and team professional activities in the interdisciplinary field where is committed to cooperation. K_K01: is sensitive to caring problems, ready to communicate and cooperate with the environment, including people who are not specialists in a given field, and to actively participate in groups and organizations implementing caring and social activities into integrated care

Metody dydaktyczne

Classes are conducted using best practices of integrated EOL care in Europe; methods are based on observation (viewing) with various methods of self-inquiry: case studies, situational studies, ideas exchange. Active participation in classes will be encouraged, presentation of an individual case study of good practice in EOL care. Problem analysis, situational method, films, multimedia presentations, and other project method will be used and students will have freedom of choice

Metody dydaktyczne podające

- wykład problemowy
- wykład informacyjny (konwencjonalny)

Metody dydaktyczne poszukujące

- studium przypadku
- seminaryjna

Metody dydaktyczne w kształceniu online

- metody służące prezentacji treści
- metody wymiany i dyskusji

Wymagania wstępne

Basic knowledge of social sciences, including caring, social work and social work pedagogy, but interdisciplinary competences of various other specialties are very welcome here; good knowledge of English will help, but do not be afraid if thing your English is not good enough-you will see that's not the case

Kryteria oceniania

Class attendance and active participation at discussions related to the topic of the classes. Moreover, reviews of selected articles in this field and presentation of selected good practice in EOL care in Europe.
Presentations will be prepared and presented as part of the final exam, with:
very good grade (5): the student has a very good knowledge and prepared very good presentation; good grade (4): the student has a good command of the material and prepared good presentation; satisfactory grade (3): the student has a basic knowledge and prepared good enough presentation;
unsatisfactory grade (2): the student has not mastered the material at all and did not prepare any presentation

Praktyki zawodowe

During the lectures, online meetings and discussions with representatives of interdisciplinary care teams responsible for various aspects of integrated care for the seriously ill, their relatives and bereaved people will be possible.

Literatura

Literature in English - available online or given as files by professor:
Janowicz A., P. Krakowiak, A. Stolarczyk [Eds.], In Solidarity. Hospice-Palliative care in Poland, Gdańsk 2015, ISBN 978-83-940626-3-7.
Kellehear A. Compassionate Cities: Public health and end-of-life care. London: Routledge, 2005.
Krakowiak P., Leszek Pawłowski, Volunteering in hospice and palliative care in Poland and Eastern Europe, w: The Changing Face of Volunteering in Hospice and Palliative Care, Editors: Ros Scott, Steven Howlett, Oxford University Press 2018, 83.
Krakowiak P., Deka R, Janowicz A., Solidarity and compassion—prisoners as hospice volunteers in Poland. Ann Palliat Med 2018;7(Suppl 2):S109-S117. Available online: https://www.researchgate.net/publication/324892907
Krakowiak P, Skrzypińska K, Damps-Konstańska I, et al. Walls and Barriers. Polish Achievements and the Challenges of Transformation: Building a Hospice Movement in Poland. J Pain Symptom Manage 2016;52:600-4.
Pawłowski L, Lichodziejewska-Niemierko M, Pawłowska I, Leppert W, and Mróz P. (2016) Nationwide survey on volunteers’ training in hospice and palliative care in Poland, BMJ Supportive & Palliative Care, Published Online First: 29 July 2016 doi:10.1136/bmjspcare-2015-000984.)
Wegleitner K., Heimerl K., Kellehear A. (Eds), Compassionate Communities. Case Studies from Britain and Europe, 1st Edition, Routledge NY, 2016.
Carers UK website: www.carersuk.org/about-us/who-we-are/our-history
Royal College of Nursing UK: https://www.rcn.org.uk/clinical-topics/end-of-life-care
Marie Curie, UK: https://www.mariecurie.org.uk/help/support/diagnosed/recent-diagnosis/palliative-care-end-of-life-care
Irish Hospice Foundation : https://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/resources/
Right at home, Ireland: https://www.rightathome.ie/care/medical-conditions/end-of-life-care
Death and end-of-life, Scotland: https://www.gov.scot/policies/death-and-end-of-life/palliative-and-end-of-life-care/

Więcej informacji

Dodatkowe informacje (np. o kalendarzu rejestracji, prowadzących zajęcia, lokalizacji i terminach zajęć) mogą być dostępne w serwisie USOSweb:

Strona przedmiotu 2403-OG-EN-ICFP w USOSweb