Conducted in terms: 2022/23Z, 2023/24Z, 2024/25Z, 2025/26Z

ISCED code: 0920

ECTS credits: 4

Language: Polish

Organized by: Institute of Educational Sciences (for: Faculty of Philosophy and Social Sciences)

Palliative care 2403-PS-207-sj

The aim of this course will be to introduce the concepts of hospice movement, palliative care, palliative and hospice care, end-of-life care, care integration; help after loss and accompanying mourning.
The classes will be aimed at showing the non-medical aspects of palliative care, with particular emphasis on the integration of family carers and the local community in the care process. The tasks of educators and other specialists in the field of social sciences (psychologist, social worker) will be presented.
Social, emotional and spiritual problems for end-of-life patients and for bereaved and caring families will be assessed and explained.
The principles of the work of an interdisciplinary team will be presented, as well as the special role of social education and social work in end-of-life care and in the process of bereavement.
Social education on care at the end of life, death and mourning will be outlined, with particular emphasis on voluntary work, involvement of schools and local communities.

Thematic blocks:
1. Discussion of the subject syllabus, presentation of obligatory and additional reading. Presentation of the book by P. Krakowiak et al., Solidarni. Palliative and hospice care in Poland, Gdańsk 2015 (available online for students).
Introduction to palliative care (OP); division of tasks within the framework of discussing the subject and a proposal to create groups dealing with individual elements of OP-presentations.
2. Prenatal OP and the possibility of cooperation with prenatal medicine and parents expecting a disabled child.
3. Pediatric OP and its cooperation with special educators in the home environment and in institutions.
4. Home care for adults, disability of OP patients and possibilities of social support for patients and families.
5. Stationary OP for adults - tasks for educators, psychologists, social workers and volunteers.
6. Support for family caregivers during the exercise of OP - the idea of respite / relieving care and good practices of emotional, spiritual and social support.
7. Volunteering in OP - presentation of development, various forms of volunteering in OP and good practices of cooperation with teams.
8. Support after loss and accompanying in mourning as tasks of OP - presentation of forms of support after loss for various groups. 9. Integration of PO and care for people at the end of life as a task for the local community and examples of effective education on the needs of people at the end of life and their relatives.
10. Summary of the work of the groups responsible for the 8 elements discussed at subsequent meetings during the seminar. Adoption of the presented and revised presentations by subsequent groups. Presentation of the assessment of personal essays based on the analysis of literature for the selected topic, with a personal analysis of the student's own attitude in relation to the end of human life, experienced losses and the experience of mourning.

Term 2024/25Z:

None

Total student workload

Conversatorium: Contact hours with the participation of the instructor - 30h Self-study: 90h - reading literature to prepare for classes - 40h - preparation of the presentation, followed by its corrections and corrections - 30h - preparation and writing an individual essay - credit - 20h Seminar: Total workload: 120h (4ECTS) The possibility of hybrid classes using online remote sessions.

Learning outcomes - knowledge

W1: The graduate has knowledge of the assumptions of disability studies, including terminology and theoretical models of disability (religious, medical, social and cultural); K_W03. W2. The graduate has knowledge of the principles and ethical standards in rehabilitation, education, therapy and rehabilitation. K_W06. W3: The graduate has knowledge about the systems of approach to disability and dependence at the end of life in the context of theoretical models of disability. K_W08.

Learning outcomes - skills

U1: The graduate has the skills to recognize and interpret social phenomena ─ showing their connection with various areas of special education and other social sciences, as well as humanities and medicine. K_U02 U2. The graduate has the ability to work in a team (in various roles), undertake and assign tasks, cooperate with other specialists and volunteers in palliative care, as well as with parents and families. K_U09

Learning outcomes - social competencies

K1. The graduate is sensitive to problems in the area of special education, ready to communicate and cooperate with the environment, and to actively participate in groups and organizations that carry out educational, rehabilitation and supportive activities in palliative care. K_K02 K2. The graduate is aware of the need for constant self-improvement. K_K03.

Teaching methods

* Conversatorium, discussions, and exercises with elements of problem-based lectures * Case study * Kolb's experiential learning method * Group work and discussion * Individual reflection and independent student work * Teaching materials: films, book excerpts, podcasts relevant to the class topic

Observation/demonstration teaching methods

- display

Expository teaching methods

- problem-based lecture
- participatory lecture
- description
- narration
- discussion

Exploratory teaching methods

- panel
- case study
- experimental
- observation
- classic problem-solving
- situational
- brainstorming
- practical
- seminar

Online teaching methods

- methods referring to authentic or fictitious situations
- cooperation-based methods
- exchange and discussion methods
- methods developing reflexive thinking

Type of course

compulsory course

Prerequisites

(in Polish) Podstawy pedagogiki specjalnej i terapeutycznej, psychologii zdrowia i komunikacji interpersonalnej

Course coordinators

Term 2022/23Z:

Piotr Krakowiak

Term 2025/26Z:

Piotr Krakowiak

Term 2023/24Z:

Piotr Krakowiak

Term 2024/25Z:

Małgorzata Fopka-Kowalczyk

Assessment criteria

Assessment methods:
Colloquium:
Above 95% – grade: very good
90% – grade: good plus
80% – grade: good
70% – grade: satisfactory plus
60% – passing threshold, grade: satisfactory
Additionally – attendance in classes and active participation wil be taken in consideration.

Practical placement

not applicable

Bibliography

Literatura obowiązkowa:
James Sarah, Krakowiak Piotr, Mortality and loneliness: towards less-lonely grief, The Bloomsbury handbook of solitude, silence and loneliness / ed. by Julian Stern, Christopher A. Sink, Małgorzata Wałejko and Wong Ping Ho, London, Bloomsbury Academic : 2022, [2021], S. 310-322. dostępna w Teams
Krakowiak P., Gaps in end-of-life care and lack of support for family carers in Poland and Central Eastern Europe, „Palliative Care and Social Practice”, 14, 2020, open access - dostępna w Teams
Janowicz A. , P. Krakowiak, A. Stolarczyk (red.), Solidarni. Opieka paliatywno-hospicyjna w Polsce, Gdańsk 2015, ISBN 978-83-940626-2-0. (biblioteka UMK, calość dostępna online w języku angielskim - dostępna w Teams : In Solidarity. Hospice-Palliative care in Poland, Gdańsk 2015, ISBN 978-83-940626-3-7. Publikacja dostępna online pod: www.researchgate.net/publication/305637247

J. Binnebesel, Z. Bohdan, P. Krakowiak, D. Krzyżanowski, A. Paczkowska, A. Stolarczyk (red.), Przewlekle chore dziecko w domu. poradnik dla rodziny i opiekunów, Fundacja Hospicyjna, Gdańsk 2012. (wybrane rozdziały)
Krakowiak P., Krzyżanowski D., Modlińska A. (red.), Przewlekle chory w domu. Poradnik dla rodzin i opiekunów, Gdańsk, Fundacja Hospicyjna 2010. (wybrane rozdziały)

Literatura uzupełniająca (nieobowiązkowa):
Krakowiak Piotr, Wsparcie duchowo-religijne osób u kresu życia i ich bliskich, w: Dylematy etyczne i społeczne w trudnych sytuacjach medycznych początku i końca życia / pod red. Władysława Sinkiewicza, Małgorzaty Chudzińskiej i Grzegorza Grześka, Wydawnictwo Naukowe Uniwersytetu Mikołaja Kopernika, Toruń, 2020, S. 195-214, ISBN 978-83-231-4431-1.
Buss T., Lichodziejewska-Niemerko M.: Opieka paliatywna w Polsce – od idei do praktyki. Forum Medycyny Rodzinnej. 2(4): 277–285. https://journals.viamedica.pl/forum_medycyny_rodzinnej/article/viewFile/10209/8709 dostępne online
Dangel T et al: Pediatryczna domowa opieka paliatywna w Polsce 2013. dostępne online: https://www.termedia.pl/Pediatryczna-domowa-opieka-paliatywna-w-Polsce-2013-,59,25000,1,0.html
Janowicz A. , P. Krakowiak, A. Paczkowska, B. Sikora, Zdrowa rozmowa. Sztuka komunikacji z osobami u kresu życia i ich opiekunami, Gdańsk 2014, ISBN 978-83-931389-7-5.
Janowicz A. Opiekunowie rodzinni. Wyzwania i możliwości wsparcia. CeDeWu Warszawa; 2019.
Krakowiak P., Praca socjalna w opiece u kresu życia na świecie i możliwości jej rozwoju w Polsce, Piel. Zdr. Publ. 2011, 1,3, 245–250. Available online
Krakowiak P. The loneliness of family caregivers of home care patients in Poland. Inspirations from Carers UK in social education towards their inclusion and support. Paedagogia Christiana 2020; 45: 185–200, http://www.paedchrist.umk.pl/zeszyt/1/45/2020/the-loneliness-of-homecare-family-caregivers-in-poland-inspirationsfrom-carers-uk-regarding-social-education-fortheir-inclusion-and-support (Publikacja dostępna online)
Krakowiak P., Wolontariat w opiece u kresu życia, Toruń 2012.

Term 2024/25Z:

None

Notes

Term 2022/23Z:

None

Term 2023/24Z:

None

Term 2024/25Z:

None

Additional information

Additional information (registration calendar, class conductors, localization and schedules of classes), might be available in the USOSweb system:

Description of 2403-PS-207-sj in USOSweb